Definition
Whether the informal carer provides assistance with one or more core activities (communication, mobility and self-care), as represented by a code.
Components
-
Data Element ConceptInformal carer—primary status
-
Object ClassInformal carer
-
PropertyPrimary status
-
-
Value DomainYes/no/not stated/inadequately described code N
Representation
This representation is based on the value domain for this data element, more information is available at " Yes/no/not stated/inadequately described code N ".| Data Type | Number |
|---|---|
| Format | N |
| Maximum character length | 1 |
| Value | Meaning | Start Date | End Date | |
|---|---|---|---|---|
| Permissible Values | 1 | Yes | ||
| 2 | No | |||
| Supplementary Values | 9 | Not stated/inadequately described |
Comments
Guide for use:
This data element should only be reported in relation to service users that have a carer.
Self-care includes activities such as bathing, dressing, eating and/or toileting.
Mobility includes moving around the home and/or moving around away from home (including the ability to use transport or drive a motor vehicle) and getting in or out of bed or a chair.
If the only support provided to a service user is in the area of public transport or driving a motor vehicle and this support is not required every time the service user uses these modes of transport, then a person is not generally considered to be a primary carer. For example, if a person drives the service user to the shops every second Wednesday to go shopping, and the service user can normally move/get around on their own using public transport or a motor vehicle, then the person would not be considered a ‘primary carer’.
Communication includes making oneself understood by strangers/family/friends/staff, in own native language if applicable, and understanding others.
Origin:
Commonwealth State/Territory Disability Agreement National Minimum Data Set (CSTDA NMDS) collection. Data Guide: data items and definitions 2006-07.
Comments:
This data element can be used to identify whether the carer is a primary carer (as per the Australian Bureau of Statistics Survey of Disability, Ageing and Carers) and thereby facilitates comparisons with population estimates of the number of informal carers who are also primary carers. This is important in the estimation of need for services.